Monthly Archives: March 2015
I have to admit, I’ve committed to a throw back. That’s right, actual paper and pen…a new journal for this lady. I find that keeping my laptop with me for all ideas and random thoughts doesn’t really work out, and I’m not dedicated enough most nights to stay up this late writing. On tumultuous weekends, like this one, it’s easier to just pull out my little journal and take a written escape or create a rant or just jot down my thoughts. I’m a lightweight when it comes to this journaling, and certainly don’t want anything negative online…I keep those thoughts completely to myself, in the journal. Not that it’s a negative thing to talk or write honestly but rather that my drama is just that, my own.
I admit that I’m finishing one journal before I begin the new one, at least that is the plan. The new journal is for my Florida trip, my getaway, my sunshine therapy…though I am itching to write in it. I need to get to Staples and get some fun pens, and by fun I mean gel pens. I’m silly like that…always wanting the new paper to have new pens. Or maybe, if I’m lucky, find a really fun color…that would be fantastic. I used to have a quill style pen that wrote in a lovely shade of purpley blue…that sounds so girly but it was the most gentle color, so friendly and soft, comforting like a pale blue sky. I ran out of ink for it years ago and was never able to find a pen to its equal. But I will find something!
So while I have been absent here online for a bit, I’m still writing. It’s the throwback type of writing though, looking inward while letting it all flow onto paper. It reminds me what it is I love about writing…the feel of the paper, the ink, handwriting. It’s what brought me to literature and writing to begin with, taking me back to my roots and a love I found as a child. Old school…maybe. Throw back…for sure. But first love…absolutely!
I am extremely flattered to have received this award from SendSunshine who reminds me often that my small voice in this universe has value, strength and beauty. What would we do without her amazing site… she is the sunshine towards which I turn my face!
So many times, people have said “Every cloud has a silver lining” and yet, being a bit cynical, it was easy for me to shake it off and think, “yes, I have heard that before.” I didn’t always listen, but I always tried to see the other person’s point of view, even just briefly. You know, sometimes you get something in your mind and just can’t get around it, regardless of all the good intentioned advice. Today however, the most amazing silver lining showed itself in glorious color to me, and I am on cloud nine!
During my cancering process, I have continued to believe that with all this drama there is something out there bigger than my illness. I’ve gotten through surgery, I am almost done with chemotherapy, my hair is beginning to grow back however slowly, and after a trip to Florida I still have 36 sessions of radiation. There will still be doctor appointments and blood tests and a PET/CAT scan or two, not to mention regular checkups…and of course, the implants to replace “the girls” who left my body in November. Sigh…that sounds like so much. But still, there has to be something bigger. There has to be something more than just this illness and the affiliated appointments and office visits. More than just surgery and chemo and radiation treatments. Something bigger…
I’ve been a great patient, staying hopeful and positive and full of good energy. I’ve allowed my family to stress while I stayed calm and took care of as much as I could by myself. I’ve kept our lives as close to normal around my recovery and treatments as possible. I don’t press anyone for feelings or questions, and provide as much honest and open communication as I can, to allay any worries. And I still answer, “I’m doing well, feeling good, feeling stronger every day” to the ever present “How are you feeling” questions. I’m just not the down and out kind of girl, and though I have had some discouraging moments, I’ve kept my eye on the prize of something bigger. I know and have stated to many that there has to be something bigger, that something positive has to come out of all this.
I’ve learned that giving back has to be part of my recovery process. As someone who has worked nearly every day of my life since I was 13 (I’m 43 so it’s been quite some time), I was feeling lost at being taken down by related fatigue causing me to give my notice at work. I became panicked and stressed as soon as I made that decision, wondering how our household would continue to run and if I had made a mistake. Was it too late not to get done at work? Should I and could I just bite the bullet and fight through what I was feeling…would I heal correctly if I didn’t respect the messages my body was sending…what had I done by making this decision…
And then my doctor told me about the various foundations specific to breast cancer designed to help families in my situation. Two programs stepped up to provide financial assistance… “rent and power bill covered my dear, no worries.” I have a hard time asking for help, so along with Thank You notes, I let both programs know that I love to write and take pictures, that I’m great at networking, and would be happy to provide assistance with any fundraising projects. I wanted to give back to these programs for the kindness shown to me and my family, and also knew that there were others that my foundation work would provide assistance to. Both programs thanked me for volunteering politely, but I wondered if they took my offer seriously ….
Today was the day. One program, MyBreastCancerSupport, sent me an email and asked me to speak at an event and fundraiser in August, to be an advocate for the program and more importantly, for patients like me. It will be an opportunity to speak to survivors, donors, and patients (or so I hope) … to share an element of my story, to thank the organization for their kindness, and to stress the importance of programs like this one. It sounds like a sales pitch, I get it, but the world needs groups like this; patients need groups like this; and as a recipient, it’s my job to make sure others, and many are worse off than I am, get the same information and connection and charity that I received. I’m so honored to have been invited to speak, so excited, and so looking forward to celebrating my process, my story, and my overcoming. I’m going to celebrate with many others who saw something bigger than this illness. Elated might be a better word…giving back, finally!
In a world where negative news seems to pervade and surround our lives, it’s easy to question humanity. It has been rediscovered and is absolutely beautiful … the kindness, compassion and empathy I have received from friends and family and now a group of total strangers has left me speechless. It is my turn now to remind another spirit, to awaken a light in someone new, and to be a part of a program that is part of that beauty. My silver lining is stunning, shining so brightly that it’s brilliance takes my breath away!!
In today’s politically correct world, where truth has to be carefully worded and spoken to avoid, I mean let’s admit it, hurting feelings, it’s very difficult to be clear and direct. I make every attempt to provide a clear but polite brush-off, when boundaries are being crossed, especially those of someone I’m very close to, my son.
It seems, the more I come in contact with the younger kids, that the relationships are all so desperate, for lack of a better word. It’s a clingy, constant texting, unlimited access via phone and computer, constant photographing of the young couple, posting of various “I wish our love was like….” and choose appropriate photo or comic. And then, once all those posts and song lyrics for the first hour are used up and awaiting approval, response, likes, comments, and lovey responses, it’s time to find new posts and movies and messages and comics/photos. It has to be exhausting! That’s a lot of work for a first time relationship or high school romance. I believe in happy endings, don’t get me wrong…but those messages just wear me out, just reading them or seeing them. Desperate…clingy…needy…dependent…
But back to the brushoff…my son is in his first real relationship. And it is long distance to boot which makes it even harder. Like all young couples, there are multiple FB posts, song lyrics, etc and all day/all night texting…and she texts my phone as well. Right now, she is feeling ignored and from a female perspective, I know that feeling and can empathize. As Mike’s Mom, I can’t disclose the details she so desperately wants to hear from me…clearly, loyalty is to the boy first. He is currently going through something right now…he looks a mess and seems to have no energy or desire to make the effort to look any better. He is quiet and keeps to himself…we don’t talk as often as we did a while ago…he sleeps for long stretches of times and naps whenever he can catch a free moment. He ignores the intimate details and focuses on xbox where he can disconnect from the thoughts and demands swimming through his head. I can see it…I don’t have to press for those details as they are physically written all over his appearance. And then her text comes….again.
I politely say he seems to be going through something, but stay positive and talk to him directly. Be open. Ask if you can help. He’s working on his license, fixing up his truck (which has been a huge project), looking for a better and full time job (sort of). He is trying to buy her plane tickets so she can come home to Maine and they can be together. He’s 20…it’s a handful to manage. But she needs to talk to him…be straight with him…call a spade a spade (which I told her) as she is giving up her own home and vehicle, her family, the town and world she has known her entire life.
And still more texts come…again I respond with You really need to speak to him yourself, not to me. I don’t have the answers she is looking for, he hasn’t talked to me but I know him just based on who he is. That’s a very clear message in my mind…talk to him directly…I don’t think there are any mixed signals or miscommunicated ideas. Is there a more polite brush-off to avoid getting myself out of this conversation?
This looks like a fantastic list of books…I definitely need to get my hands on these titles!
I recently finished reading The Girls of Atomic City: The Untold Story of the Women Who Helped Win World War II by Denise Kiernan. It is a fascinating look into a town that never existed on any map but had a HUGE influence on the outcome of World War II. Although not all of the residents were women, of course, the story is told through the lives of several different ladies who found themselves at this historic place. These women varied in the amount of education they had received, their race, marital status and part of the country they were from, but all of them contributed to output that Oak Ridge was designed to create – enriched uranium for use in the first atomic bombs, including the ones dropped on Japan in August of 1945.
As I was reading this book, it reminded me of another I had read a…
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In the throes of unclouding and uncluttering my brain, I ended up figuring out something. As much as I want to overlook and give little value to my cancering process, it sits before me like an elephant in the room. It has slowed my life down to a fairly uncomfortable pace which is difficult for me to process…the slowing down has made me think a bit less of myself as I am currently not working…and in an effort to keep my spirits vibrant and fresh and strong, I began to examine where I am at.
As my story mentioned, my perspective has become very clear. I know that I am not satisfied with my current position or status in life. For a long time I have settled, played the game and done the right thing. I’ve been a good girl, a good do-bee, a good worker. However, at this point in my life there has to be something more, something bigger … bigger than just getting along, bigger than overcoming the cancer, bigger than my self worth being determined by a ticking clock (I mean working 8 hours a day, not a life clock.)
I return repeatedly to the life coach field, how that might look for me, what steps I can take now while I’m burning time at home. It means reconnecting with society, overcoming my own insecurities to get out and talk with people, finding the right certification programs to validate my services and direction, and being able to effectively navigate questions that I will be asked or situations that could use my skills, background, knowledge, etc.
To me, this is a valid and much needed field. It can provide guidance and direction, set goals and see incremental steps become success, and provide an outside voice/perspective to get someone through.
There has to be more … whether it is working with cancer patients, coaching new patients, providing information, serving as a life coach or a cancering coach, writing about all this or just creating newsletters for local events and charities and facilities, volunteering as a writer and photographer, or my dream job of opening a bookstore there has to be more. I know…perspective and focus are strong but details still need to be ironed out.